Well, that's it. Or rather, I hope that's it. Jonah will still go in annually for surgical follow-up, get chest x-rays and make sure that diaphragm of his is behaving. We'll still need to go every few months for NICU followups for his prematurity. And we'll need to watch him carefully if he ever shows signs of malrotated bowels (vomiting bile) or difficulty breathing. We need to protect his lungs as much as possible while the left one grows and matures, shielding him from sickness during this awful flu season and taking him for RSV shots this first winter. We have increased risk for asthma and a few other long term things that we'll deal with in the future. But, by and large, we're done with the really hard part (praying its so, fingers crossed, hoping, knock on wood, anything else I can do)!
Thank you, thank you, THANK YOU to all of the people who have been praying for him! Certainly don't stop, we'll always need your prayers! Thank you to our family and friends for supporting us and loving us and thank you to our church family for helping and supporting us as well!
Thank you, thank you, THANK YOU to the wonderful nurses and doctors at Children's Hospital of Wisconsin! Thank God that we were in the right place at the right time to get the best care for Jonah!
Thank you, thank you, THANK YOU to the people on the CHERUB boards for their support. I wasn't around much as I didn't join until we were already in the hospital and I was obsessed with being with Jonah nearly every possible minute, but when I did have a question, you guys were right there. Fantastic website for information about CDH!
And last but not least, thank you, thank you, THANK YOU to Giles and Janel, another family who's son was born with CDH just two weeks after Jonah in the same hospital, who we were able to talk with and spend time together, and who showed us what unbelievable faith and peace we should have as Christians. You guys are amazing and we hope Elijiah comes home really soon!
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