Welcome to our CDH Journey

Our son Jonah was born with a Congenital Diaphragmatic Hernia (CDH). When we were pregnant and first diagnosed, I began searching the Internet for information on this birth defect. I found information scattered across many sites and found it helpful, but I also wanted to hear from people who had been through it. I found several excellent blogs, both from parents of living CDH survivors as well as CHERUB angels. My darling CDH survivor is now six months old, and telling our story on this blog is my attempt to give back to the CDH community. I know it would have been better to have posted throughout the journey, but it was so crazy, I'm going to recreate it here using my paper journal, emails to/from friends, my scrapbook, and my calendar. The dates have been modified so they appear on the day that the events happened. Here we go...